Osteopetrosis Support Trust

This site has been designed to provide information mostly for families affected by the severe form of the disease called Malignant infantile osteopetrosis. This is usually diagnosed very early in life. We also provide some information on other forms of the disease.

Thank you for visiting our site. Should you wish to comment on this site, please send me an e-mail @ alison@osteopetrosis.co.uk All feedback is greatfully received.

Many thanks to Dr Colin Steward, who has put an immense amount of work into preparing all the "medical" material for this site.

This website has been designed by Nick Gould, friend of Osteopetrosis Support Trust.

Disclaimer: This site is provided for information only. It is specifically for parents and families of children who have the disease.
Should you wish to ask any specifically medical questions we urge you to contact your own doctors.

Osteopetrosis Support Trust is a registered charity number 1013052